We were released from the hospital yesterday afternoon! It's been a little crazy so I hadn't had time to update the blog until now. We had a home health nurse come to the house last night with a pump for her continuous feeds she receives through her feeding tube and supplies to go along with it. We also had to stop at the WIC office to have them add formula to our list of things we can get along with the prescription for the certain kind she needs. Then we had to get all of her prescriptions filled. Needless to say by the time I was able to relax and concentrate on taking care of Ambrosia I was wiped out and falling asleep in the recliner with her. She slept great last night in her crib and only woke up once around 5:30 this morning. She seems to really be enjoying being at home.

This morning I had to take our son Braeden back to the pediatrician as he woke up complaining his ear was hurting. He had just finished antibiotics to take care of it. The pediatrician didn't see any infection lingering so we just have to wait and see how he does the next couple of days.

Ambrosia's pump has been giving me a flow error starting this morning. I've had to call her home health people and then her pediatric oncologist office. We have determined that stopping her continuous feeds for today is fine as she has been nursing so well until her appointment tomorrow in the clinic. They will take a look at it then as we think it's an issue on Ambrosia's end of the feeding tube and not the pump itself.

Now for the rest of today I just have to relax and take care of my two adorable kids. Pretty easy task.
Larry
11/8/2012 06:38:17 am

I admire you for your strength and hope you and yours the best I know going thru this has to be the worst thing ever. Will definitely be praying for you

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Aunt Kathy
11/8/2012 08:23:20 pm

We are rejoicing with you! I am keeping a vision of Ambrosia starting school, happy and healthy and able to tell her story of healing and blessing.

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Jennifer Haber
11/9/2012 06:19:52 am

Don't forget about coconut water as a option to formula, it keeps the body in an akaline state which cancer does not thrive. It is safe to give to infants and it has many healing qualities. It a great hydrator for her chemo sessions. You can buy green coconuts in which the water is best and most nutritious.

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