Sunday, Ambrosia felt warm to me all day. I kept taking her temperature under both her arms checking to see if she was running a fever. She was also a little bit whinier than usual and I could tell by looking at her that she didn't feel too good. After taking her temperature multiple times during the day, we finally hit the mark under both arms that made me call Kosair. One arm said 101.1 the other said 100.7. We are supposed to call when we hit 100.4. Of course they told us to come in. I packed up enough clothes for a weeks stay and some toys as I wasn't sure how long our stay would be this time.

When we got there they came and took blood cultures from both her lines. This was a little after 5:30 pm. They checked her out and started her on an antibiotic immediately. It's one they always start with until they know exactly what type of infection it is. By 1 am the blood cultures had already come back positive for an infection. It was a strep infection. Ambrosia had a strep infection previously in December. We were unable to go home on antibiotics with that infection because the medication they tried to send us home on Ambrosia had a reaction to. So I wasn't too hopeful that we were going to get out soon.

I had planned to have a birthday party for both Braeden and Ambrosia this coming Saturday the 11th. I now had to inform people that it might be delayed. Such is life with a child that has cancer. It's hard to make plans because anything can come up!

Dr. Lucas came to check on Ambrosia yesterday and said that her respiratory rate was up a little and he wanted to have a chest x-ray done as a precaution. Her respiratory rate means how many breaths she takes in a minute. He also said that her blood cultures from that morning had already come back negative. That put us one step closer to going home. All they had to wait on was sensitivities to come back from the infection so they would know what kind of antibiotic it would respond to. Awhile later they came and took an x-ray of her chest. The x-ray showed a little haziness in her lungs so they started her on an extra antibiotic.

This morning Dr. Lucas came again and said that the haziness on her lungs could be from the infection she had, but it also could be walking pneumonia so just in case it was that they had started the other antibiotic yesterday. He also said they would be starting her outpatient chemo medicine soon. On top of that they were able to secure the experimental chemo medicine from the drug company. It was approved and everything for her to start taking. It's never been used in a human before so Ambrosia will be one of the first. Let's hope it shows some results. I am not sure if this experimental chemo is an outpatient medicine or inpatient. That is something I need to have clarified.

Our nurse today said that when they did rounds about Ambrosia she would try and push to find out when we might be able to go home. She came back awhile later to say that Dr. Lucas had said going home today was a long shot but that it was a possibility. We both thought it was definitely a long shot, I was just hoping we would be out before Saturday so we could move forward with birthday party plans. They were supposed to be checking for the sensitivities to make sure the antibiotic it said was one we could go home with.

Just a little while ago, she came in and said we were going home today! The antibiotic the infection showed sensitivity to is one Ambrosia has had before so we know she will not have a reaction to it. This is all good news! I am writing this from the hospital but we should be home this afternoon!
stephanie jacobson
5/8/2013 01:42:29 am

Sooo happy you got good news and can still have the party! Keeping my fingers crossed the new chemo helps take care of her

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