Yesterday home health came out to the house to get a CBC count on Ambrosia. There was one nurse in the clinic office, even though they weren't open, who was going to receive the results of her counts. On my way to Frankfort yesterday afternoon to visit my parents and grandmother, the nurse from the clinic called with her CBC results. Her hemoglobin was still fine but her platelets had dropped down to 29. Because of that she wanted us to come in to the clinic today for them to do another count instead of waiting until Wednesday. She anticipated she would need a platelet transfusion.
During dinner, the pediatrician that takes care of Braeden and had been taking care of Ambrosia before her diagnosis called. He has been following along with Ambrosia's care in the computer and has called after CT's and other tests before to check in with us. He wants us to know they are all thinking of her and following her progression. He asked if anyone had called about her CT results yet and I said no. He proceeded to tell me what the radiologists report read. It said that the tumor on her liver appears to have shrunk some more since her last scan, but it was hard to tell for sure. At best it's not gotten bigger than the last scan. There is a spot on her lungs that has gotten bigger. The report also mentioned a spot on the spleen. He said he of course is not in charge of her care and that we knew we were up against an aggressive tumor from the start. He saw Ambrosia last Thursday when I took Braeden in to the doctor and was amazed at how well she looked and is doing and said we have to take that in to consideration with her care.
Today, we went to the clinic so they could do another count on her. Her hemoglobin level was still good and her platelets had actually increased to 65. So we didn't need any transfusions today. We saw a nurse practitioner that we hadn't met yet, who went over the CT scan results. She said much the same as the pediatrician had told me the day before. The report says the spot on the spleen could be from the contrast they put in her, but it could also indicate tumors. The spot on the liver is smaller if not the same as it was since November and there is a spot on the lungs that has increased in size. She went to call Dr. Cheerva about the CT scan to see what we needed to do next.
She came back a few minutes later to say that Dr. Cheerva was at that moment meeting with the tumor board about Ambrosia. They were figuring out what the next move is going to be, whether that is surgery or more chemo. We are going back to the clinic on Thursday for more counts and to meet with Dr. Cheerva who should be able to tell us the next plans for her care.
As of right now I am determined to continue to take this one day at a time and focus on Ambrosia's well being and care from one day to the next.
During dinner, the pediatrician that takes care of Braeden and had been taking care of Ambrosia before her diagnosis called. He has been following along with Ambrosia's care in the computer and has called after CT's and other tests before to check in with us. He wants us to know they are all thinking of her and following her progression. He asked if anyone had called about her CT results yet and I said no. He proceeded to tell me what the radiologists report read. It said that the tumor on her liver appears to have shrunk some more since her last scan, but it was hard to tell for sure. At best it's not gotten bigger than the last scan. There is a spot on her lungs that has gotten bigger. The report also mentioned a spot on the spleen. He said he of course is not in charge of her care and that we knew we were up against an aggressive tumor from the start. He saw Ambrosia last Thursday when I took Braeden in to the doctor and was amazed at how well she looked and is doing and said we have to take that in to consideration with her care.
Today, we went to the clinic so they could do another count on her. Her hemoglobin level was still good and her platelets had actually increased to 65. So we didn't need any transfusions today. We saw a nurse practitioner that we hadn't met yet, who went over the CT scan results. She said much the same as the pediatrician had told me the day before. The report says the spot on the spleen could be from the contrast they put in her, but it could also indicate tumors. The spot on the liver is smaller if not the same as it was since November and there is a spot on the lungs that has increased in size. She went to call Dr. Cheerva about the CT scan to see what we needed to do next.
She came back a few minutes later to say that Dr. Cheerva was at that moment meeting with the tumor board about Ambrosia. They were figuring out what the next move is going to be, whether that is surgery or more chemo. We are going back to the clinic on Thursday for more counts and to meet with Dr. Cheerva who should be able to tell us the next plans for her care.
As of right now I am determined to continue to take this one day at a time and focus on Ambrosia's well being and care from one day to the next.
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