Yesterday morning they stopped Ambrosia's continuous feeds at 4 am along with me being able to nurse her. They were supposed to have some testing done in the morning to get a baseline for her hearing and kidney function as some of the medicine she will be getting can affect both. There was a miscommunication between all the departments in getting coordinated with getting her down to where she needed to be. Finally, they got it sorted and a time of 1 pm was given for testing. All the while she still hadn't had anything to eat. She did very well though.

At 1 pm, we went down to sedation. The audiologist was waiting and started one portion of the test while they waited on the sedation doctor. Then we were told the sedation doctor was with someone else and it would be another 15 minutes. The audiologist had to be at a meeting so she went on and started the next portion of the test while a nurse held Ambrosia and got her to sleep. She slept through the last part of the test with no problems. Then the sedation doctor walked with us to the Nuclear Medicine department for the kidney function test. They got that started no problem and with no sedation. So basically we waited forever for nothing as sedation services were not needed.

They started her chemo medicine around 7 pm last night. She did great. Around 1:30 am she woke up and was wanting to play. I took some video of her playing. Then the nurse came and got her. Put her in one of the wagons they have and walked around with her until she fell asleep. They kept her at the nurses station so I could get some uninterrupted sleep and brought her back in the room around 6:30. She has been up and playing again this morning. They will start her chemo medicine again this evening.


Jennifer Haber
11/14/2012 06:49:11 am

Great Video! Thanks for sharing. Ambrosia is so cute! We are continuing to pray knowing GOD is in control.

Reply
Brenda Coffey
11/15/2012 07:41:30 am

Anya,Ambrosia is so beautiful and happy...I look everyday to see how things are going.My Mom asks about her every time I talk to her. She is praying for her.I pray for everyone involved with her care.Love you and Wes!!!

Reply
Heather Baker
11/14/2012 10:00:24 pm

Such a sweet video! Glad that she is in good spirits and what an amazing Momma your are! Praying for that sweet baby!

Reply



Leave a Reply.