We made it home one day from the hospital for Ambrosia's infection before we had to go back to the hospital. Ambrosia was crawling and crawled a little too far from her feed pump. She subsequently pulled loose the tape that was holding her tube on her face off and then pulled her tube almost completely out. I broke down at that point because we had just made it home the day before! I called the nurse practitioner and they had me bring her in. They wanted me to go to OMO first to make sure her platelets were good before sending us to get the tube replaced. Ambrosia's platelets ended up being fine and we went to get her tube replaced. She was able to get her tube replaced with no problems and because she's a champ, no sedation as always.
Friday, we went back to OMO for them to check her out again. Ambrosia had developed a little bit of a runny nose and cough at this point. I assumed it was probably part of her infection she was being treated for. To be cautious they took a swab of her nose to send off. All her numbers came back good. They told us to come back on Monday to be seen again and the plan was to start outpatient chemo on Tuesday.
Saturday, we had a joint birthday party for Ambrosia and Braeden. Everything went well. Braeden of course loved opening his presents and helping Ambrosia to open hers. It was nice to be able to spend time with family and see everyone.
Monday came and we headed back to OMO. They took blood again of course to check Ambrosia's numbers, which came back good. Dr. Cheerva had mentioned the outpatient chemo normally was a 5 day run but since Ambrosia was newly off transplant they were only going to do 3 days. The plan was to start chemo today.
We arrived bright and early this morning to register and were the first ones there, which guaranteed us a room without too much wait time. While we were waiting a mom and daughter came in to register. After they registered we got to talking. She asked about what kind of cancer Ambrosia had and I explained where we were with treatments and how rare hers was. She said her daughter had a very rare form of leukemia. The prognosis for her daughter was not very good in the beginning, but now it was 3 years later. That gave me some hope that Ambrosia can fight this for a long time, maybe long enough that a cure will be found for her cancer. There's always hope.
After a little bit of a wait we were told we could go over to OMO. They took labs again to check her numbers and I settled in to wait for chemo to start. It started to get later and later. 2 hours passed and I finally poked my head out of the door to see what was going on and why nothing had started yet. One of the nurses caught me and told me the nurse practitioner had just got there and was on her way in to see us. The nurse practitioner came in and said that the swab they took of Ambrosia's nose the other day came back showing she had a virus. Metapneumovirus to be exact. So we would not be starting chemo today. They reswabbed Ambrosia's nose and we go back to OMO on Thursday. They will have the results of the swab then and will take a look at her again. If she looks good and the swab comes back negative they will start chemo. Otherwise it may be delayed until next week.
Because Ambrosia is newly home from transplant they are being extra cautious. If they were to start this outpatient chemo while she has this virus, Ambrosia could get very sick. Even though her numbers are good, her immune system is not back to normal. It won't be back to normal for 6 to 9 months. So while this is a set back it is better to be cautious.
Friday, we went back to OMO for them to check her out again. Ambrosia had developed a little bit of a runny nose and cough at this point. I assumed it was probably part of her infection she was being treated for. To be cautious they took a swab of her nose to send off. All her numbers came back good. They told us to come back on Monday to be seen again and the plan was to start outpatient chemo on Tuesday.
Saturday, we had a joint birthday party for Ambrosia and Braeden. Everything went well. Braeden of course loved opening his presents and helping Ambrosia to open hers. It was nice to be able to spend time with family and see everyone.
Monday came and we headed back to OMO. They took blood again of course to check Ambrosia's numbers, which came back good. Dr. Cheerva had mentioned the outpatient chemo normally was a 5 day run but since Ambrosia was newly off transplant they were only going to do 3 days. The plan was to start chemo today.
We arrived bright and early this morning to register and were the first ones there, which guaranteed us a room without too much wait time. While we were waiting a mom and daughter came in to register. After they registered we got to talking. She asked about what kind of cancer Ambrosia had and I explained where we were with treatments and how rare hers was. She said her daughter had a very rare form of leukemia. The prognosis for her daughter was not very good in the beginning, but now it was 3 years later. That gave me some hope that Ambrosia can fight this for a long time, maybe long enough that a cure will be found for her cancer. There's always hope.
After a little bit of a wait we were told we could go over to OMO. They took labs again to check her numbers and I settled in to wait for chemo to start. It started to get later and later. 2 hours passed and I finally poked my head out of the door to see what was going on and why nothing had started yet. One of the nurses caught me and told me the nurse practitioner had just got there and was on her way in to see us. The nurse practitioner came in and said that the swab they took of Ambrosia's nose the other day came back showing she had a virus. Metapneumovirus to be exact. So we would not be starting chemo today. They reswabbed Ambrosia's nose and we go back to OMO on Thursday. They will have the results of the swab then and will take a look at her again. If she looks good and the swab comes back negative they will start chemo. Otherwise it may be delayed until next week.
Because Ambrosia is newly home from transplant they are being extra cautious. If they were to start this outpatient chemo while she has this virus, Ambrosia could get very sick. Even though her numbers are good, her immune system is not back to normal. It won't be back to normal for 6 to 9 months. So while this is a set back it is better to be cautious.
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