Monday we went to the clinic for them to check Ambrosia's numbers. She didn't need to have any blood or platelets that day but her numbers were down enough that they ordered for her to continue her neupogen shots past Tuesday.
Wednesday we went back to the clinic for them to check her numbers again. This time she needed platelets. So we headed over to OMO for them to transfuse platelets. Luckily platelets don't take as long as blood to transfuse.
Today we went back to clinic for them to check numbers to decide when we will be going back in for our next chemo admit. She was going back up finally in numbers but I still have to give her shots tonight and tomorrow. Monday home health will be coming out to get a CBC on her to check her numbers and then Wednesday we will go back in the clinic for preadmit counts and most likely be admitted that day to start chemo round number 5.
The clinic had set up for Ambrosia to have a CT scan today of her chest and abdomen to assess how the tumors are responding to her chemo. We had to be at outpatient registration at 12 this afternoon and were supposed to have sedation, then go to CT by 1:30. Everything actually went as planned. They had to give her a contrast that had to be in her for about 40 minutes before they could do the CT and that put us going back to CT pretty much on time. She fell asleep before they took her back and stayed asleep while they put sedation medicine in her to make sure she wouldn't wake up during the CT. Everything went smoothly and we were able to get in and out in a timely fashion! I am not sure exactly when we will know the results of the CT scan or if it will affect any plans for starting chemo next week. It would be nice if it shows the tumor is small enough to be removed now safely so that we could skip chemo this time and have surgery instead. But we also want them to do the best thing possible for Ambrosia and her situation.
Ambrosia had her first "professional" pictures taken yesterday. I had bought a pretty dress that was on clearance at Target from their holiday dresses and knew I wanted to get her picture taken in it. I also made a hairbow to go with it. So yesterday I took her to get her pictures taken and she did wonderful. The photographer said she wished all babies were as good as Ambrosia was to photograph. Here is one of the pictures from her session!
Wednesday we went back to the clinic for them to check her numbers again. This time she needed platelets. So we headed over to OMO for them to transfuse platelets. Luckily platelets don't take as long as blood to transfuse.
Today we went back to clinic for them to check numbers to decide when we will be going back in for our next chemo admit. She was going back up finally in numbers but I still have to give her shots tonight and tomorrow. Monday home health will be coming out to get a CBC on her to check her numbers and then Wednesday we will go back in the clinic for preadmit counts and most likely be admitted that day to start chemo round number 5.
The clinic had set up for Ambrosia to have a CT scan today of her chest and abdomen to assess how the tumors are responding to her chemo. We had to be at outpatient registration at 12 this afternoon and were supposed to have sedation, then go to CT by 1:30. Everything actually went as planned. They had to give her a contrast that had to be in her for about 40 minutes before they could do the CT and that put us going back to CT pretty much on time. She fell asleep before they took her back and stayed asleep while they put sedation medicine in her to make sure she wouldn't wake up during the CT. Everything went smoothly and we were able to get in and out in a timely fashion! I am not sure exactly when we will know the results of the CT scan or if it will affect any plans for starting chemo next week. It would be nice if it shows the tumor is small enough to be removed now safely so that we could skip chemo this time and have surgery instead. But we also want them to do the best thing possible for Ambrosia and her situation.
Ambrosia had her first "professional" pictures taken yesterday. I had bought a pretty dress that was on clearance at Target from their holiday dresses and knew I wanted to get her picture taken in it. I also made a hairbow to go with it. So yesterday I took her to get her pictures taken and she did wonderful. The photographer said she wished all babies were as good as Ambrosia was to photograph. Here is one of the pictures from her session!
She now has sparkles all over from wearing that dress! I daresay a few have transferred themselves to me as well. I am glad to have some nice pictures of her.
That is all the updates I have for now. Thankfully nothing too exciting has been going on with us. It almost feels normal around here!
That is all the updates I have for now. Thankfully nothing too exciting has been going on with us. It almost feels normal around here!
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