One more day of being at home before we go back to the hospital. Things have been going pretty well. The only problem we've had is with the NJ tube that Ambrosia gets her continuous feeds through. The pump kept saying it was clogged somewhere in the line. It kept saying it every 15 minutes or so. Finally last night after we had a chance to stop, I called the home health nurse and she told me to get some Coke and flush it into her line. A little wasn't going to hurt her and the Coke would dissolve any clogs. She said to cap her line after putting the Coke in and let it sit for 30 minutes and repeat if needed. It took a little over an hour and me constantly working on it, but I finally was able to flush down her line with no stoppage. She's been back on her continual feeds with no problems since!
Yesterday Braeden had his first basketball game with the Y. He had a lot of fun, especially since he already knows two of his teammates. One is a classmate in his Kindergarten class and the other played on his Spring soccer team. He's got a lot to learn about basketball but as long as he is having fun and staying active that is what matters to me. They play with 6 feet goals and slightly smaller basketballs than normal. During practice he made a couple of goals and beamed proudly.
Ambrosia has been super sweet and smiley since being out of the hospital. It doesn't take much but a look to make her smile and giggle. It will be hard to see that go away for a little while once they start her chemo medicine again. In the end it will be worth it when she is cancer free. The doctor and I both agreed on Friday that her tummy looked smaller, like the chemo was doing it's job in shrinking the tumor. Let's hope that is the case.
I will try to update after Ambrosia's surgery tomorrow. We go in at 12 pm, but her surgery isn't until 1 pm. I don't know how long the surgery is supposed to take. I would imagine not long since they are only putting a port in for her medicine to go through. Hopefully we will get settled quickly into her room and get to relax until they start her chemo medicine.
I'm just taking this one day at a time.
Yesterday Braeden had his first basketball game with the Y. He had a lot of fun, especially since he already knows two of his teammates. One is a classmate in his Kindergarten class and the other played on his Spring soccer team. He's got a lot to learn about basketball but as long as he is having fun and staying active that is what matters to me. They play with 6 feet goals and slightly smaller basketballs than normal. During practice he made a couple of goals and beamed proudly.
Ambrosia has been super sweet and smiley since being out of the hospital. It doesn't take much but a look to make her smile and giggle. It will be hard to see that go away for a little while once they start her chemo medicine again. In the end it will be worth it when she is cancer free. The doctor and I both agreed on Friday that her tummy looked smaller, like the chemo was doing it's job in shrinking the tumor. Let's hope that is the case.
I will try to update after Ambrosia's surgery tomorrow. We go in at 12 pm, but her surgery isn't until 1 pm. I don't know how long the surgery is supposed to take. I would imagine not long since they are only putting a port in for her medicine to go through. Hopefully we will get settled quickly into her room and get to relax until they start her chemo medicine.
I'm just taking this one day at a time.
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