We've had our ups and down already with this high dose of chemo. Ambrosia hasn't quite been herself since 2 nights ago. They tried giving her plenty of different medicines to help keep her comfortable. Last night however, Ambrosia didn't go to sleep until 3:30 in the morning and only slept until a little past 5:30. At that point the nurse came in because she could hear Ambrosia was up and crying. She knew we had only gotten a couple of hours of sleep and decided to go talk to the nurse practitioner about other things they might could do to help Ambrosia be more comfortable. The nurse hooked her pulse ox up to her toe to check to see what her pulse was and also how much oxygen she was getting. Her pulse was really high which usually indicates pain or discomfort.
The nurse practitioner came to check on Ambrosia. She looked at her hemoglobin levels for today and they were low enough she decided to give her some blood. She also decided to have a chest x-ray done to see if anything was going on with the tumors on her lungs that could be causing problems. They gave her some more pain medicine and I held Ambrosia with her head on my shoulder and we sat and napped for a short while. The doctor then came to see us and decided to change her acid reflux medicine to something stronger as Ambrosia had still been having issues with vomiting. So far today she has not thrown up.
A short while after the doctor left, the nurse came in to do vitals check and Ambrosia was running a fever of 100.5. Yesterday she kept getting close to running what they consider a fever but it was going down on it's own after a short time. Today however they went on and got blood from both of her lines to check for infections. I should know more tomorrow whether or not she has an infection. Needless to say the fever made her act even less like herself.
I haven't heard back today about the chest x-ray but I am assuming no news is good news. They have put her on a schedule for certain medicines that seem to have helped her be more comfortable and right now she is acting more like herself. So hopefully being able to get these medicines in her system will help keep her acting normally. We have one more day of chemo to go. Then she will have a break for 3 days. After that she will be given her stem cells back. We still have a long road ahead so keep the prayers coming.
We have gotten several Cheer cards from people. We appreciate them! It's kind of like getting mail everyday in the hospital. Something to look forward to. For those who would like to send one we are at Kosair Children's Hospital in room 730. Put Ambrosia Hopper as the patient.
If you would like to send a Cheer card go to this link: Cheer Card
The nurse practitioner came to check on Ambrosia. She looked at her hemoglobin levels for today and they were low enough she decided to give her some blood. She also decided to have a chest x-ray done to see if anything was going on with the tumors on her lungs that could be causing problems. They gave her some more pain medicine and I held Ambrosia with her head on my shoulder and we sat and napped for a short while. The doctor then came to see us and decided to change her acid reflux medicine to something stronger as Ambrosia had still been having issues with vomiting. So far today she has not thrown up.
A short while after the doctor left, the nurse came in to do vitals check and Ambrosia was running a fever of 100.5. Yesterday she kept getting close to running what they consider a fever but it was going down on it's own after a short time. Today however they went on and got blood from both of her lines to check for infections. I should know more tomorrow whether or not she has an infection. Needless to say the fever made her act even less like herself.
I haven't heard back today about the chest x-ray but I am assuming no news is good news. They have put her on a schedule for certain medicines that seem to have helped her be more comfortable and right now she is acting more like herself. So hopefully being able to get these medicines in her system will help keep her acting normally. We have one more day of chemo to go. Then she will have a break for 3 days. After that she will be given her stem cells back. We still have a long road ahead so keep the prayers coming.
We have gotten several Cheer cards from people. We appreciate them! It's kind of like getting mail everyday in the hospital. Something to look forward to. For those who would like to send one we are at Kosair Children's Hospital in room 730. Put Ambrosia Hopper as the patient.
If you would like to send a Cheer card go to this link: Cheer Card
*I knew I would forget some things as so much is going on, so here is something I forgot to mention. Yesterday the urine they tested for Ambrosia's kidney function was only 80something which meant they weren't able to give her a full dose of chemo. Today however, her kidney function was back up to 100! So she was given the full dose again. She has been more like herself tonight and is actually sleeping. Fingers crossed she continues to feel okay!
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