Since my last update, Ambrosia finished her IV chemo and started on the experimental oral chemo. On Tuesday May 28th, Ambrosia had surgery to put her new port in. When we got upstairs to be prepped for surgery the surgeon came in to see her and was concerned a port would be too big for her. So there was a little delay as he got in touch with Dr. Cheerva to make sure it was what they wanted for her to have. Once that was cleared up, the surgery went off without any problems.
We stayed in the hospital until Friday May 31st so that Ambrosia could finish her antibiotics. After being released we were able to stay home over the weekend and enjoy some family time. I noticed Ambrosia was beginning to grunt a little more even after having pain medicine. We had an appointment at OMO (Outpatient Medical Observation) on Monday afternoon for them to see her and check numbers.
Once we finally were put in a room at OMO, Dr. Lucas and the nurse practitioner came in before any labs or anything were taken. I explained how Ambrosia had been grunting a lot more even after pain medicine. Dr. Lucas examined her and decided she needed a chest x-ray that day. He also decided that the CT scan they had scheduled for June 11th was too far away and needed to be on Tuesday or Wednesday of this week.
While we were waiting for labs to be taken and orders to be written, the child psychologist came over to see us. She said she had some good news for us. One of the Child Life team members had gotten a hold of a group in Ohio that deals with granting wishes. This group grants wishes to babies, which is something Make A Wish does not do. She told them about Ambrosia and how we would love to be able to have some time together as a family to build some memories. They wanted to make sure this was something we would be interested in. I, of course, said yes. They are not sure yet exactly what we may be doing but the group should be in touch with me soon.
After labs were taken, it showed Ambrosia's liver function was a little high so she was taken off one of her daily medications. Then we were sent to get her x-ray. Yesterday, Ambrosia had a CT done. She was grunting a lot still and they were a little concerned about sedating her. They decided to have people from anesthesia there with her in case they were needed if there was difficulties. Everything went fine and the scan was done.
Originally we were not due back to OMO until Thursday, but this morning I received a call from the nurse practitioner to see if we could come in today as they would like to go over the scan results. I am anxious about these results. As always, keep us in your thoughts and prayers.
We stayed in the hospital until Friday May 31st so that Ambrosia could finish her antibiotics. After being released we were able to stay home over the weekend and enjoy some family time. I noticed Ambrosia was beginning to grunt a little more even after having pain medicine. We had an appointment at OMO (Outpatient Medical Observation) on Monday afternoon for them to see her and check numbers.
Once we finally were put in a room at OMO, Dr. Lucas and the nurse practitioner came in before any labs or anything were taken. I explained how Ambrosia had been grunting a lot more even after pain medicine. Dr. Lucas examined her and decided she needed a chest x-ray that day. He also decided that the CT scan they had scheduled for June 11th was too far away and needed to be on Tuesday or Wednesday of this week.
While we were waiting for labs to be taken and orders to be written, the child psychologist came over to see us. She said she had some good news for us. One of the Child Life team members had gotten a hold of a group in Ohio that deals with granting wishes. This group grants wishes to babies, which is something Make A Wish does not do. She told them about Ambrosia and how we would love to be able to have some time together as a family to build some memories. They wanted to make sure this was something we would be interested in. I, of course, said yes. They are not sure yet exactly what we may be doing but the group should be in touch with me soon.
After labs were taken, it showed Ambrosia's liver function was a little high so she was taken off one of her daily medications. Then we were sent to get her x-ray. Yesterday, Ambrosia had a CT done. She was grunting a lot still and they were a little concerned about sedating her. They decided to have people from anesthesia there with her in case they were needed if there was difficulties. Everything went fine and the scan was done.
Originally we were not due back to OMO until Thursday, but this morning I received a call from the nurse practitioner to see if we could come in today as they would like to go over the scan results. I am anxious about these results. As always, keep us in your thoughts and prayers.
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